Pengalaman Penderita Lupus Dalam Menjalani Pengobatan di Era Pandemi Covid-19

Authors

  • Intan Mardhanti Pracylyaningroom Universitas Muhammadiyah Surakarta, Indonesia
  • Sri Lestari Universitas Muhammadiyah Surakarta

DOI:

https://doi.org/10.26630/jk.v13i2.3125

Keywords:

Covid-19, Lupus treatment, Lupus sufferer experience.

Abstract

The pandemic situation causes more severe pressure on patients with lupus in undergoing treatment. The purpose of this study is to describe the experience of lupus sufferers during the treatment process during the pandemic period. In this study, there were 4 people with lupus aged 15-40 years. In this study, the researcher used a qualitative research design phenomenology this data collection was carried out by semi-structure interviews. Research data were analyzed using description phenomenology. From this study, it was revealed that 4 people with Lupus felt stress during the lupus treatment during the Pandemic was very expensive and was not borne by BPJS. On the other hand, the effect of the lupus treatment carried out during the pandemic period also affects the psychological condition of 4 people with lupus, this makes 4 people with lupus experience unstable emotions. Social support from family and friends helps 4 people with lupus to remain optimistic in undergoing lupus treatment during the pandemic period.    

Author Biography

Sri Lestari, Universitas Muhammadiyah Surakarta

Universitas Muhammadiyah Surakarta

References

Cleanthous, S. T. (2012.). What Do We Know About Self - Reported Fatigue in Systemic Lupus Erythematosus? Lupus, 21, 465- 476. https://doi.org/10.1177%2F0961203312436863

Cresswell, J. (2015). Pendekatan Kualitatif & Desain Riset (Memilih di antara Lima Pendekatan). Yogyakarta: Pustaka Pelajar.

Dewi, Eriska. S. (2016). Efektivitas Terapi Kompres Dingin Dalam Menurunkan Stress Orang Dengan Lupus (Odapus) Dewasa Muda di Perhimpunan Masyarakat Peduli Lupus Parahita Malang. Vol.3, No 2, Majalah Kesehatan FKUB.

Dienillah, A. N., & Chotidjah, S. (2021). Dukungan sosial bagi penderita lupus: Dapatkah menjadi moderator bagi efek penerimaan diri terhadap rasa syukur?. Jurnal Psikologi Sosial, 19(1), 89-98. https://doi.org/10.7454/jps.2021.10

Fitri, Ahyani. R. (2012). Regulasi Emosi Odapus (Orang Dengan Lupus atau Systemic Lupus Erythematosus). Jurnal Psikologi, Vol. 08, No.01 , 8. http://ejournal.uin-suska.ac.id/index.php/psikologi/article/view/177

Hairunisa, N., & Amalia, H. (2020). Penyakit virus corona baru 2019 (COVID-19). Jurnal Biomedika Dan Kesehatan, 3(2), 90-100. https://doi.org/10.18051/JBiomedKes.2020.v3.90-100

Kementerian Kesehatan RI. (2017). Situasi lupus di Indonesia. Pusat data dan informasi. Jakarta : Kemenkes Kesehatan RI

Kementerian Kesehatan RI. (2018). PerikSA LUpus SendiRI (SALURI) - Memahami Program Deteksi Dini Penyakit Lupus Eritematosus Sistemik (LES). Jakarta. http://p2ptm.kemkes.go.id/kegiatan-p2ptm/pusat-/periksa-lupus-sendiri-saluri-memahami-program-deteksi-dini-penyakit-lupus-eritematosus-sistemik-les

Kristanto, A. W., & Hary, T. P. (2015). Motivasi hidup pada penderita lupus dewasa. Jurnal Spirits, 5(2), 1-6. https://doi.org/10.30738/spirits.v5i2.1058

Laeli, S. A., & Karyono, K. (2017). Pengalaman Sakit Pada Penderita Lupus: Interpretative Phenomenological Analysis. Jurnal Empati, 5(3), 566-571. https://ejournal3.undip.ac.id/index.php/empati/article/view/15409

Margaretha, R. P. (2013). Pengaruh Penerimaan Diri Terhadap Penyesuaian Diri Penderita Lupus. Jurnal Psikologi Undip, 12(1).

Moustakas, C. (1994). PhenomenologicalResearch Method. California: SAGE.

Nery F. G, B. E. (2007). Major Depressive Disorder and Disease Activity in Systemic Lupus Erythematosus. Comprehensive Psychiatry, 48, 14-19. https://doi.org/10.1016/j.comppsych.2006.04.002

Prakoeswa, F. R. S. (2020). Dasamuka Covid-19. Medica Hospitalia: Journal of Clinical Medicine, 7(1A), 231-240. https://doi.org/10.36408/mhjcm.v7i1A.457

Savitri, T. (2005). Aku dan Lupus. Jakarta: Puspa Swara.

Seligman, M. (2006). Learned Optimism: How to Change Your Mind & Your Life. New York: Vintage Books.

Seligman, M. (2008). Menginstal Optimisme: Bagaimana Cara Merubah Pemikiran dan Kehidupan Anda. Terjemahan: Budhy Yogapranata. Bandung: PT. Karya Kita.

Sugiyono. (2014). Metode Penelitian Kombinasi (Mixed Methods). Bandung: Alfabeta.

Utami, S. (2008). Proses penerimaan diripadawanita penderita systemic lupus erythematosus (SLE). [Skripsi]. Malang: Fakultas Psikologi Universitas Muhammadiyah Malang.

Downloads

Additional Files

Published

07-09-2022